Patients’ Experiences and Perceptions of MultidisciplinaryRehabilitation Services Following Stroke: A Qualitative Study

Authors

  • Feng Yu Faculty of Medicine, Dentistry, and Health Sciences, Universitas Prima Indonesia, Medan, Indonesia Author
  • Chrismis Novalinda Ginting Faculty of Medicine, Dentistry, and Health Sciences, Universitas Prima Indonesia, Medan, Indonesia Author
  • Gilbert Lister Faculty of Medicine, Dentistry, and Health Sciences, Universitas Prima Indonesia, Medan, Indonesia Author

DOI:

https://doi.org/10.61919/ez6s3848

Keywords:

stroke; multidisciplinary rehabilitation; patient experience; qualitative research; person-centred care; goal setting; continuity of care

Abstract

Background: Multidisciplinary stroke rehabilitation addresses interacting physical, communicative, psychological, and social needs. Survivors accounts can clarify whether professional contributions are experienced as coordinated, personally relevant, and continuous across care settings.
Objective: To explore stroke survivors’ experiences and perceptions of multidisciplinary rehabilitation, focusing on coordination, communication, involvement in goal setting, and continuity between institutional rehabilitation and everyday recovery. Methods: A qualitative descriptive studyexamined rehabilitation experiences in Medan, Indonesia. The sample comprised 15 adult stroke survivors with experience of rehabilitation involving
at least three professional disciplines. The sampling strategy was maximum-variation purposive sampling. The author team conducted semistructured individual interviews and undertook reflexive thematic analysis through familiarisation, coding, identification of patterns across accounts, and theme development and refinement. Results: Participants included eight men and seven women aged 39–76 years; ten had experienced ischemic
stroke and five hemorrhagic stroke. Three interconnected themes described their experiences: “One Team, Many Voices”—coordination shaped confidence in rehabilitation; “Recovery Became Meaningful When the Goals Became Mine”—communication, autonomy, and individualized rehabilitation; and “The Hardest Part Began After Discharge”—continuity, accessibility, and rebuilding everyday life. Participants valued complementary professional expertise when roles and recommendations formed an understandable plan. Meaningful goals connected therapeutic activities with household tasks, family responsibilities, and employment. Preferences for involvement varied, and clinician guidance could bereassuring. Returning home could make rehabilitation more relevant while exposing environmental barriers, fatigue, financial and transportation difficulties, increased reliance on family, and uncertainty about further support. Conclusion: Participants experienced multidisciplinary rehabilitation positively when professional contributions were coherent, goals reflected valued activities, emotional concerns were recognised, and support remained understandable and accessible across settings. Their accounts suggest priorities for service organisation and further evaluation rather than evidence of comparative treatment effectiveness.

References

1. Feigin VL, Brainin M, Norrving B, Martins S, Sacco RL, Hacke W, et al. World Stroke Organization (WSO): Global Stroke Fact Sheet 2022. Int J Stroke. 2022;17(1):18-29. doi:10.1177/17474930211065917.

2. Feigin VL, Brainin M, Norrving B, Martins SO, Pandian J, Lindsay P, et al. World Stroke Organization: Global Stroke Fact Sheet 2025. Int J Stroke. 2025;20(2):132-144. doi:10.1177/17474930241308142.

3. National Institute for Health and Care Excellence. Stroke rehabilitation in adults. NICE guideline NG236 [Internet]. London: NICE; 2023 [cited 2026 Oct 15]. Available from: https://www.nice.org.uk/guidance/ng236

4. Greenberg SM, Ziai WC, Cordonnier C, Dowlatshahi D, Francis B, Goldstein JN, et al. 2022 Guideline for the Management of Patients With Spontaneous Intracerebral Hemorrhage: A Guideline From the American Heart Association/American Stroke Association. Stroke. 2022;53(7):e282-e361. doi:10.1161/STR.0000000000000407.

5. Abu Saydah H, Turabi R, Sackley C, Moffatt F. Stroke Survivor's Satisfaction and Experience with Rehabilitation Services: A Qualitative Systematic Review. J Clin Med. 2023;12(16):5413. doi:10.3390/jcm12165413.

6. Lo TLT, Lee JLC, Ho RTH. Recovery beyond functional restoration: a systematic review of qualitative studies of the embodied experiences of people who have survived a stroke. BMJ Open. 2023;13(2):e066597. doi:10.1136/bmjopen-2022-066597.

7. O Connor E, Dolan E, Horgan F, Galvin R, Robinson K. A qualitative evidence synthesis exploring people after stroke, family members, carers and healthcare professionals' experiences of early supported discharge (ESD) after stroke. PLoS One. 2023;18(2):e0281583. doi:10.1371/journal.pone.0281583.

8. Fors S, Bråndal A, Pessah-Rasmussen H, Lindgren I. Experiences of chain of care and rehabilitation after stroke: a qualitative study of persons discharged to skilled nursing facilities before returning home. J Rehabil Med. 2024;56:jrm35240. doi:10.2340/jrm.v56.35240.

9. Liu S, Liu X, Yang X, Huang S, Xie W, Xiao W, et al. Exploring Experiences and Perceptions of Stroke Survivors in Hospital-To-Home Transition Care: A Qualitative Systematic Review. J Clin Nurs. 2025;34(2):592-624. doi:10.1111/jocn.17564.

10. Sun X, Shi Y, Liu C, Wang S, Li D, Zhu X, et al. Experience and needs of stroke patients in physical rehabilitation: a systematic review and meta-synthesis. BMC Health Serv Res. 2025;25(1):1062. doi:10.1186/s12913-025-13213-7.

11. Zang S, Ye M, Qi W, Wu Z, He M, Lou Q, et al. Factors influencing participation of patients who had a stroke in rehabilitation shared decision-making: a qualitative meta-synthesis. BMJ Open. 2026;16(1):e103985. doi:10.1136/bmjopen-2025-103985.

12. Muhrodji P, Wicaksono HDA, Satiti S, Trisnantoro L, Setyopranoto I, Vidyanti AN. Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia. F1000Res. 2022;10:380. doi:10.12688/f1000research.52135.2.

13. Buckingham SA, Anota E, Barba MM, Boac V, Estrada M, Faeldon L, et al. 'Pagbangon at Pag-Asa' (Resurgence and Hope): A Qualitative Study of the Lived Experiences of People With Stroke and Household Carers in the Philippines. Health Expect. 2026;29(1):e70537. doi:10.1111/hex.70537.

14. Buckingham S, De Vera JA, Faeldon L, Kent B, Logan A, Ong A, et al. A Multi-Sector Mixed Methods Study of Stroke Services in the Philippines: Insights From Government Officials and Organisational Leaders. Int J Health Plann Manage. 2025;40(5):1033-1047. doi:10.1002/hpm.3939.

15. Zhan J, Zhang P, Wen H, Wang Y, Yan X, Zhan L, et al. Global prevalence estimates of poststroke fatigue: A systematic review and meta-analysis. Int J Stroke. 2023;18(9):1040-1050. doi:10.1177/17474930221138701.

16. Larsson P, Bidonde J, Olsen U, Gay CL, Lerdal A, Ursin M, et al. Association of post-stroke fatigue with physical activity and physical fitness: A systematic review and meta-analysis. Int J Stroke. 2023;18(9):1063-1070. doi:10.1177/17474930231152132.

17. Zhao B, Yao Y, Gao T. The effect of psychological intervention on the quality of life and rehabilitation outcome of stroke patients with anxiety and depression: A systematic review. Medicine (Baltimore). 2024;103(45):e40439. doi:10.1097/MD.0000000000040439.

18. Song YY, Sun WJ, Wang C, Tian YM, Liu H, Jiang Y. Effects of multicomponent exercise on quality of life, depression and anxiety among stroke survivors: A systematic review and meta-analysis. J Clin Nurs. 2023;32(21-22):7677-7690. doi:10.1111/jocn.16853.

19. Notkin GT, Molsted S, Jensen MB, Lind L, Bove DG. How do stroke survivors experience rehabilitation goal setting and plans to support their rehabilitation? A qualitative study. Disabil Rehabil. 2026;48(1):108-116. doi:10.1080/09638288.2025.2499578.

20. Vieira A, Pereira CM, Goes AR. Exploring readiness to patient-centered goal-setting in stroke Rehabilitation-A qualitative study. Disabil Rehabil. 2026. Epub ahead of print. doi:10.1080/09638288.2026.2716825.

21. Vingerhoets C, Hay-Smith J, Graham F. 'Beyond the surface': a qualitative study exploring the experiences of stroke survivors and their families in sharing their values, preferences, and circumstances in inpatient rehabilitation. Disabil Rehabil. 2026;48(17):5551-5566. doi:10.1080/09638288.2026.2627995.

22. Helbach J, Hoffmann F, Hecht N, Heesen C, Thomalla G, Wilfling D, et al. Information needs of people who have suffered a stroke or TIA and their preferred approaches of receiving health information: A scoping review. Eur Stroke J. 2025;10(1):5-21. doi:10.1177/23969873241272744.

23. Wang S, Li D, Zhu S, Guo X, Xu M, Wang H, et al. The supportive care needs of stroke patients: A scoping review. Res Nurs Health. 2024;47(5):532-550. doi:10.1002/nur.22406.

24. Dorward E, Devlin A, Brusco NK, Dulfer F, Whittaker SL, Reeder S, et al. Patients' perceptions of participating in self-directed activities outside supervised occupational and physiotherapy within inpatient and home-based rehabilitation settings: a qualitative study. Disabil Rehabil. 2025;47(3):592-600. doi:10.1080/09638288.2024.2341872.

25. Shao J, Wang Q, Zhang X, Liu K, Sha L, Shi H, et al. This is a personal journey: a qualitative study on the influencing factors of home-based exercise rehabilitation behavior among stroke survivors. Front Neurol. 2026;17:1736073. doi:10.3389/fneur.2026.1736073.

26. Tan K, Thayabaranathan T, Purvis T, Wang Y, Kilkenny MF, Nelson MR, et al. Unmet needs poststroke and associated factors: A systematic review and meta-analysis. Rehabil Psychol. 2026. Epub ahead of print. doi:10.1037/rep0000675.

27. Jee S, Jeong M, Paik NJ, Kim WS, Shin YI, Ko SH, et al. Early Supported Discharge and Transitional Care Management After Stroke: A Systematic Review and Meta-Analysis. Front Neurol. 2022;13:755316. doi:10.3389/fneur.2022.755316.

28. Carlsson GE, Törnbom K, Nordin Å, Sunnerhagen KS. Coming home in the context of very early supported discharge after stroke - An interview study of patients' experiences. J Stroke Cerebrovasc Dis. 2024;33(9):107869. doi:10.1016/j.jstrokecerebrovasdis.2024.107869.

29. Törnbom K, Carlsson GE, Nordin Å, Sunnerhagen KS. Patients' experiences of very early supported discharge after stroke: safety, emotional support and feelings of control in everyday life. Disabil Rehabil. 2025;47(12):3100-3107. doi:10.1080/09638288.2024.2415332.

30. Jammal M, Kolt GS, Liu KPY, Dennaoui N, George ES. The impact of caregiving on the roles and valued activities of stroke carers: A systematic review of qualitative studies. PLoS One. 2024;19(5):e0304501. doi:10.1371/journal.pone.0304501.

31. Wang L, Liu J, Wu L, Zhang J, Fang H. Caregiving experiences of stroke caregivers: A systematic review and meta-synthesis of qualitative studies. Medicine (Baltimore). 2023;102(13):e33392. doi:10.1097/MD.0000000000033392.

32. Nuccio E, Petrosino F, Simeone S, Alvaro R, Vellone E, Pucciarelli G. The needs and difficulties during the return to work after a stroke: a systematic review and meta-synthesis of qualitative studies. Disabil Rehabil. 2024;46(21):4901-4914. doi:10.1080/09638288.2023.2287016.

33. Corbin S, Damiolini E, Termoz A, Huchon L, Rode G, Schott AM, et al. Rehabilitation professionals' views on individual peer support interventions for assisting stroke survivors with reintegration into the community: a qualitative study. Disabil Rehabil. 2023;45(26):4413-4423. doi:10.1080/09638288.2022.2152115.

34. Sharififar S, Ghasemi H, Geis C, Azari H, Adkins L, Speight B, et al. Telerehabilitation service impact on physical function and adherence compared to face-to-face rehabilitation in patients with stroke: A systematic review and meta-analysis. PM R. 2023;15(12):1654-1672. doi:10.1002/pmrj.12988.

35. Alwadai B, Lazem H, Almoajil H, Hall AJ, Mansoubi M, Dawes H. Telerehabilitation and Its Impact Following Stroke: An Umbrella Review of Systematic Reviews. J Clin Med. 2025;14(1):50. doi:10.3390/jcm14010050.

36. Söderhielm K, Tistad M, Ytterberg C, Guidetti S. Experiences of F@ce 2.0: a person-centred intervention for home-based rehabilitation after stroke supported by digital technology - a qualitative study. BMJ Open. 2025;15(7):e089147. doi:10.1136/bmjopen-2024-089147.

37. Braun V, Clarke V. Thematic analysis: a practical guide. London: SAGE; 2022.

38. Braun V, Clarke V. Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine: A review of published research and introduction to the Reflexive Thematic Analysis Reporting Guidelines (RTARG). Palliat Med. 2024;38(6):608-616. doi:10.1177/02692163241234800.

Downloads

Published

2026-10-22

Data Availability Statement

De-identified data may be available from the corresponding author on request, subject to participant consent and institutional confidentiality requirements.

How to Cite

[1]
Feng Yu et al. 2026. Patients’ Experiences and Perceptions of MultidisciplinaryRehabilitation Services Following Stroke: A Qualitative Study. Link Medical Journal. 4, 2 (Oct. 2026), e268. DOI:https://doi.org/10.61919/ez6s3848.

Most read articles by the same author(s)

Similar Articles

111-120 of 170

You may also start an advanced similarity search for this article.